UPDATE: Tonight on GBTV, baby Jett and his family will be on a special Father's Day episode of The Glenn Beck Program.
Buy the shirt HERE
Over the weekend, Glenn read the story of a family whose newborn son has a rare genetic disorder that will limit his growth and his lifespan. The parents, who love to travel, have found an innovative way to bring their take their son around the world while also raising awareness of his disease - and now Glenn is going to help them.
The Blaze explains:
KSL, based out of Salt Lake City, describes the couple, now residing Omaha, Neb., first finding out something was wrong with their son when he was born in December with a cleft lip. Everything seemed normal for about a month until they, even as new parents, began to feel he was acting strangely. After a misdiagnosis, Jett was eventually diagnosed with pontocerebellar hypoplasia. According to the National Institute of Health, infants with this condition have a small cerebellum and the region of the brain called the pons doesn’t develop properly. KSL reports the condition means Jett won’t grow past his six-month-old size and he is not expected to live past infancy.
“Jett will leave us well before we want him to,” Cody said to KSL. “He will never learn to talk, walk, eat or hold his head up. In my eyes, worst possible thing for a child to have. We decided we just have to love him for as long as we have him, and to make his life as comfortable and happy as we can.”
Knowing that even in what is expected to be a short life, the medical costs to help Jett live comfortably will be great. Coleman’s brother-in-law Jeremy Rigby developed T-shirts to sell with proceeds going to a bank account for Jett’s medical treatments. But the T-shirts with a cartoon in a small airplane and the words “Jett B.” are doing much more.
Not only have more than 100 shirts been sold, they are also how Jett is getting to “travel.” Coleman’s wife suggested people who buy the T-shirts send the family back photos of where they had been wearing them.
Ever since the story went up on The Blaze, the Boseman family has been overwhelmed with orders and support. Glenn asked his team to reach out, and 1791 will now be handle manufacturing the shirts and processing the orders. 1791 will not be making a profit from the sales of the shirt.
Buy the shirt HERE