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DONATE: #Bubby Is America's Charlie Gard, Help Him Get the Treatment Charlie Didn't

August 10, 2017
 Staff

WRITER

A couple whose son has the same debilitating condition as Charlie Gard shared their story on radio Tuesday.

Russell Cruzan II and Michelle Budnik-Nap in Kalamazoo, Michigan, had no idea that their baby Russell would be born with mitochondrial DNA depletion syndrome. In a one-in-a-million coincidence, both parents carry the same gene, and their baby had a very small chance of inheriting the gene from both of them.

“[Russell and Charlie] both have mitochondrial DNA depletion syndrome; it’s just different gene mutations causing it,” Budnik-Nap explained.

It first appeared Bubby's treatment would be covered by insurance but the parents had some disheartening news shortly after their interview on Tuesday.

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"About an hour after our interview with you on Tuesday, we heard from our local hospital. They were the ones that were working on the prior authorization. They had received a denial from... Priority Health, stating that they will not cover the mito specialist in Boston, because she's a geneticist. And he sees a geneticist here. They don't understand that there's a difference between, you know, a mito specialist and a geneticist around here," Michelle said.

"Hold on. Guys, we are talking about $10,000 probably, maximum. This audience should be able to do that in the next ten minutes," Glenn said.

"Could you please go to YouCaring.com and just search for Bubby Cruzan. B-U-B-B-Y C-R-U-Z-A-N. It's #Bubby. Look for Bubby Cruzan. And if you can, $5 -- I mean, the people in this audience, just giving $5 at a time, we should be able to make a difference so this -- this couple can go get just an initial appointment to see if their baby can be helped so we can fight the other battle with -- what's the name of the health care company again?

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GLENN: I mean, if you thought the country had gone mad a minute ago, wait until we play the audio of some woman who was told on an airplane, "Wow, nice dress." Oh, my gosh. Wait until you hear the rant and what this woman is saying and who this woman is, in just a second.

First, we want to bring you up to speed on a story we covered a couple of days ago. If you remember the parents of Bubby Cruzan -- Russell Cruzan, the baby that was born and has the same disease that Charlie Gard had. We had the parents on.

They're from Wisconsin, I believe. Or Michigan. And they were really happy and bubbly. And we asked them, how are things going? They said great things about their insurance company, which may change. Their insurance company, which was priority health, I believe.

And they said everything was being covered. And now it's not. We got to get this story. Bubby Cruzan's mother Michelle is on the phone. Also, dad Russell is on the phone. How are you guys doing?

RUSSELL: Pretty good, how about you?

MICHELLE: Good.

GLENN: Good. Tell me what happened. Because we were hearing good things about this insurance company two days ago.

MICHELLE: Well, about an hour after our interview with you on Tuesday, we heard from our local hospital. They were the ones that were working on the prior authorization. They had received a denial from -- from Boston -- or, not Boston's -- I'm sorry. Priority Health, stating that they will not cover the mito specialist in Boston, because she's a geneticist. And he sees a geneticist here. They don't understand that there's a difference between, you know, a mito specialist and a geneticist around here.

GLENN: Right. And the geneticist that you have there in Michigan is -- is saying that, no, I'm the wrong kind of specialist.

MICHELLE: Yep. Yep. They're obviously doing everything they can. But they don't really have experience with his condition.

GLENN: So now what are you guys going to do? Are you guys appealing this? What is the name of the insurance company again?

RUSSELL: Priority Health.

MICHELLE: Priority Health. You know, we're working on an appeal right now. And we're also working with Boston Children's Hospital to see if they will allow us to make the appointment right now without insurance approval and, you know, possibly end up having to pay out of pocket. We just want to do everything we can to get little Russell to a doctor that can help him.

GLENN: Well, here again, we are seeing, you know, insurance providers -- in England, it was the state. In America, it is -- I'm sorry. What is the name of the company again?

RUSSELL: Priority Health.

GLENN: Priority Health.

Here we're seeing -- Stu, will you just remind me of that, in case I forget again?

STU: I don't remember the name. What was the name again? I'm sorry.

RUSSELL: Priority Health.

STU: Priority Health. Got it.

GLENN: Priority Health. Here we're seeing a company that decides that they know better than the actual doctors do. That's weird. Because the state over in England were listening to the doctors. Here in a capitalist, free market system, a company like --

PAT: And who was the company?

GLENN: Priority Health. Priority Health.

RUSSELL: Priority Health. Priority Health.

GLENN: They think they know more than the doctors, which is interesting. Boy, that probably should be -- I wonder if they have a website or if they have a Facebook.

Jeffy, could you look up Priority Health. So if they have a Facebook page.

JEFFY: Priority Health.

GLENN: Oh, my gosh, they don't like it -- companies don't like when you start to tweet their name and say things like, "How could you do what the health care system did to Charlie Gard? Are we going to run the clock out on this child too?"

Do they have a Facebook page? Look it up. It's Priority Health. I'm sure you could find it and maybe tweet Priority Health on that and ask them how this is -- how this is good for the family.

You have a YouCaring page. If you search for Bubby. B-U-B-B-Y. YouCaring.com. Can we -- if listeners wanted to help, you know -- you know, give you guys money to be able to pay for it yourself, will the hospital take self-funded people?

MICHELLE: We're working on that right now. We believe that if we had the funds to it, which right now we don't have any idea how much it would cost. But we've heard that -- another person said they had a 25-minute appointment there that cost over $2,000. They put the figure around 2800. But we're hoping if we have the funds, you know, after our travel and everything, that we would be allowed to pay out of pocket.

GLENN: So wait a minute. So you're just trying to get enough money to buy the airline ticket and the first doctor's appointment?

MICHELLE: We're -- we're working on it, yeah. Thankfully, Miracle Flights reached out to us after your show. Thank you so much. And, you know, they might help with that. But we still have lodging costs. Obviously, food for when we're there. Any expenses related to --

GLENN: Okay. Okay. Okay. Hold on.

MICHELLE: Pay for the appointment.

GLENN: Hold on. Guys, we are talking about $10,000 probably, maximum. This audience should be able to do that in the next ten minutes.

Could -- could you please go to YouCaring.com and just search for Bubby Cruzan. B-U-B-B-Y C-R-U-Z-A-N. It's #Bubby. Look for Bubby Cruzan. And if you can, $5 -- I mean, the people in this audience, just giving $5 at a time, we should be able to make a difference so this -- this couple can go get just an initial appointment to see if their baby can be helped so we can fight the other battle with -- what's the name of the health care company again?

RUSSELL: It's Priority Health.

GLENN: Priority Health.

PAT: And it looks like Priority Health is on Facebook. And they also have LinkedIn.

JEFFY: Twitter, @Priority Health. Facebook.

PAT: They're all over the internet.

GLENN: Really?

PAT: Yeah.

RUSSELL: They're one of the largest ones in the company.

GLENN: Huh, and what's their Facebook page?

RUSSELL: They should have like the most money. And they just don't want to cough it up.

STU: I think to get the Facebook page, you just go to Facebook.com and search for "Priority Health."

GLENN: Priority Health. That's how you do it? Facebook.com.

And I know companies, they like to hear on their Facebook page and they like to see on Twitter, they like to see people, you know, point all of the wonderful things that they have done. Now, sometimes, companies don't like it when you point out the heartless things that they might be forgetting to do. But I'm sure they have just forgotten that they -- the business that they all, you know, dreamt about getting into when they were kids and they were on the playground. Some day, I'm going to be an actuary. Some day, I'm going to be an insurance agent for Priority Health. I'm sure they've just forgotten those dreams from the playground and forgotten that they're there to help heal people.

PAT: You would assume by the name, Priority Health, that health is a priority. Wouldn't you?

GLENN: You would. You would.

PAT: You would think that, but...

JEFFY: Hmm. They've got a feedback button on their website too.

GLENN: Do they really? Priority Health has that?

JEFFY: Sends them a secure email.

PAT: That's interesting.

GLENN: Let's say you had $5 and you could go to YouCaring.com and you could help this couple raise money so we don't, as a capitalist, free society, do exactly to these parents what England's health care system did just a few weeks ago. Let's -- let's show the world that that's not the way capitalism works. That that's not the way free people behave. Let's get them into an appointment. And let's say -- if you have time after that, you might go to Facebook and to Twitter and just tweet something to Priority Health in a very nice, reasoned way. Because I'm sure they just need to be remind that health is their priority.

Guys, thank you so much. Michelle, Russell.

RUSSELL: Thank you.

MICHELLE: Thank you, Glenn.

GLENN: We'll check in with you again. God bless.

STU: If you go to @worldofStu, by the way, on Twitter, I tweeted the -- and I'm sure @GlennBeck will have it tweeted as well, the link to the YouCaring page. So make sure you can actually find it. And if you wanted to find any of the social sites, if you search Google for "Priority Health," you will see --

GLENN: Is that the insurance company?

STU: That's the insurance company they were just talking about.

GLENN: Priority Health.

STU: Priority Health is the name of it.

GLENN: The one that they paid to give them -- give their health priority. And then the doctor said, "No, I'm a different kind of DNA specialist. I'm really not a geneticist that can do this kind of work." And so the hospital and the doctor said they should go to this particular specialist. And Priority Health said, "No. That person is good enough for you."

PAT: Hmm.

GLENN: Huh. I wonder how much Priority Health's -- boy, we should look into Priority Health because I bet they're not gouging people's eyes out as well. I bet they would love us to spend a day, several days, a freaking month going over what they do. Maybe I could take -- you know what, if Priority Health doesn't see the error of their ways, I'm going to dedicate Monday as an open phone day. And I will take the phone calls of all of the Priority Health customers that maybe feel their eyes are being gouged out. And we'll take those calls, and we'll let America know how much their health is a priority for Priority Health.

STU: Of course, we should give them the opportunity to do that.

GLENN: I know. I know. So I think they're going to find the error of their ways. I think they're going to be able to say, you know what, that's crazy. Because we misunderstood. It's not the same kind of doctor. And we don't know more than what the experts in the field know. And so we're going to -- we're going to make this a priority.

But in case --

STU: What, health?

GLENN: In case they would like some extra free publicity, I'm going to help them have all of the free publicity that I can possibly provide. And, you know, you always say, don't talk to the -- don't -- I don't want to talk to the salesman. I want to talk to the customers.

So if they're such a great insurance company, which I'm sure they are, they won't have any problem having customers call up and give them a free commercial all freaking Monday.

But I'm sure they're going to wake up.

WATCH: The DIVIDED States of America: Is It Time for a National Divorce?

It seems the Left wants a civil war and some on the Right want a national divorce. The country is split right now unlike anything Glenn Beck has ever witnessed. There are two sides: Those who want to fundamentally change this country and those who believe in KEEPING the experiment of liberty that the Founding Founders intended.

The ideological gap seems impossible to cross, but Glenn explains why he won't secede. David Reaboi, Claremont Institute senior fellow and author of "National Divorce Is Expensive, but It's Worth Every Penny," tells Glenn why a national breakup is not an impossibility just because it will be difficult.

What can we do to fight back … peacefully? How can the states that still believe in the Constitution create pockets of freedom in the shadow of tyranny? On his Wednesday night special this week, Glenn answers that and provides a road map to preserving what the Left is trying to destroy.

Finally, James Simpson, author of "Who Was Karl Marx? The Men, the Motives and the Menace Behind Today's Rampaging American Left," provides solutions on the issues the "red states" must unite around before Left and Right America officially call it quits.

Watch the full episode of "Glenn TV" below:

Want more from Glenn Beck?

To enjoy more of Glenn's masterful storytelling, thought-provoking analysis and uncanny ability to make sense of the chaos, subscribe to BlazeTV — the largest multi-platform network of voices who love America, defend the Constitution, and live the American dream.

Rescue UPDATE: Stranded Afghan interpreter who once helped rescue Biden has finally escaped — but not with Biden's help

An Afghan interpreter who helped save then-Sen. Joe Biden's life in 2008 was among those stranded in Afghanistan after Biden's troop withdrawal. He has now escaped the country with his family, but not with President Biden's help.

Thanks to private organizations, including The Nazarene Fund, the interpreter and his family have now been rescued.

Watch the video clip below to hear Glenn Beck share the details:

Want more from Glenn Beck?

To enjoy more of Glenn's masterful storytelling, thought-provoking analysis and uncanny ability to make sense of the chaos, subscribe to BlazeTV — the largest multi-platform network of voices who love America, defend the Constitution, and live the American dream.

Congressman: We have EVIDENCE that White House initiated 'excuse' for FBI crackdown on anti-CRT parents

A shocking new report by The Daily Wire reveals that the furious father whose arrest at a school board meeting likely sparked the call for the FBI to investigate anti-CRT parents like domestic terrorists was furious for good reasons: The Loudoun County School Board allegedly tried to cover up his daughter's rape.

Rep. Chris Stewart (R-Utah) joined Glenn Beck on the radio program Tuesday to discuss the incident and explain why he joined 60 lawmakers in a letter to Attorney General Merrick Garland demanding answers for why the FBI is targeting parents.

"We want to know ... what kind of coordination took place between the White House, activist groups and teachers unions, and the Department of Justice," Stewart told Glenn. "Because we have evidence that there was [coordination] and, in fact, that the White House are the ones who initiated this. They asked for these activist groups to write this inflammatory letter to the Department of Justice saying they were 'intimidated' and that they 'felt threatened', giving the Department of Justice Attorney General Garland, the excuse to say, 'Okay, well, we have to respond'."

Stewart went on to say he believes the federal government would only involve the FBI in such an issue if its purpose is to silence and intimidate parents concerned about the "poison" being taught to their kids in school. So, what can he and the other representatives who disagree with the Biden administration's overreach of power do to stop it?

Watch the video clip below to hear Stewart explain:

Want more from Glenn Beck?

To enjoy more of Glenn's masterful storytelling, thought-provoking analysis and uncanny ability to make sense of the chaos, subscribe to BlazeTV — the largest multi-platform network of voices who love America, defend the Constitution, and live the American dream.

Glenn Beck: Taiwan is preparing for potential WAR with China — but will Biden do ANYTHING?

Taiwan's Foreign Minister Joseph Wu is now warning that his nation is preparing for war with China after Beijing flew a record number of warplanes over Taiwanese territory. Wu reached out to another country for help, but it wasn't the United States.

In a video, Wu urged Australia to help prepare for a possible invasion, but gave the U.S. no mention.

"The defense of Taiwan is in our own hands, and we are absolutely committed to that. And if China is going to launch a war against Taiwan, we will fight until the end. And that is our commitment. And, of course, during this period of time, we would like to exchange with other countries for security cooperation," Wu said on ABC News In-depth's China Tonight program. "We would like to engage in security or intelligence exchanges with other like-minded partners, Australia included, so that Taiwan is better prepared to deal with the war situation. And so far, our relations with Australia is very good. And that is what we appreciate it for."

On "The Glenn Beck Program," Glenn, Pat Gray, and Stu Burguiere discussed whether or not America would do anything during such a conflict — because it sure seems like President Joe Biden is more focused on working with China to fight climate change. Plus, why did China just cut off all cryptocurrency?

Watch the video clip below to catch the conversation:

Want more from Glenn Beck?

To enjoy more of Glenn's masterful storytelling, thought-provoking analysis and uncanny ability to make sense of the chaos, subscribe to BlazeTV — the largest multi-platform network of voices who love America, defend the Constitution and live the American dream.