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UPDATE: 15-year-old girl held at Boston Children’s Hospital against parent’s will still not allowed to go home

December 06, 2013
Wilson

Writer

Last month, Glenn shared the stunning story of Justina Pelletier, a 15-year-old girl who has been stuck in a hospital for the last nine months after the medical facility took custody of her when her parents argued against her diagnosis.

The hospital claims that the parents over-medicalized the girl, leading them to take custody. The parents have provided ample evidence that every time they’ve taken their daughter to the hospital or to the doctor, they did exactly what the doctors told them to do. But now the family finds themselves in a bitter dispute to get their girl home. It’s been ten months since they lost custody, and following the latest court hearing, Justina was still not allowed to go home.

On radio this morning, Cristy Balcells, executive director of Mitoaction.org, who is working with the Pelletier family to help them bring their daughter home, joined Glenn to discuss how Justina is doing and how people can help the Pelletier family. Learn more about Christy’s organization and how you can help HERE.

Listen to the interview below. Applicable audio begins around the 1 hour 34 min mark:

Read a transcript of the interview below:

BALCELLS: Thank you so much, Glenn, and thank you so much for helping to bring this issue to this level of awareness. It's really heartbreaking.

GLENN: This is -- this is not -- this is not the only case, and we'll get into that. But you have -- since we started talking about it, you're getting calls from people all over the country saying, "This is happening to me too."

BALCELLS: It's overwhelming. It's phenomenal. You know, we had high hopes yesterday because so many people have actually come forward to share their story and we felt like we had such a huge show of support from families, both in Boston and around the country, particularly who have had this type of experience with a child with a rare chronic disease at a children's hospital, where everything that the parent was doing was called into question and the parent was left powerless and was basically accused of harming the child when they were just trying to do the best they could to make their child better.

GLENN: I tell you, this is -- this is criminal what's happening. Cristy, explain -- explain, if you can. Tell quickly the story of what happened yesterday and what this means for the family.

BALCELLS: Well, here's what happened yesterday. Nothing. It's so incredibly frustrating. We had really -- and thought that we were going to see some progress because what else could we decide after 10 months of holding this girl captive in the hospital. Really, you need another week to get some more information? I'm flabbergasted and heartbroken for this family, and I speak on behalf of I think the entire community of parents who have children with chronic diseases and mitochondrial disease when I say that. We're horrified, and it really makes me lose faith in the legal system. I already had lost faith, I think, in our hospitals and in our medical system. As you know, I have a child who has mitochondrial disease as well, and it's an uphill battle. But to -- I had a little bit of faith left that the legal system would realize that if the child had been in the hospital for 10 months and they couldn't make her better while she was away from her parents, then maybe that original diagnosis should be reviewed again. And this little girl should be home with her family.

GLENN: Okay. Hang on just a second.

BALCELLS: Instead they told them, they said, come back next week. We'll talk about it some more.

GLENN: Okay. So it's not that they haven't made her better in 10 months. It is that she has actually gotten worse in 10 months, correct?

BALCELLS: She has gotten worse, and that's probably one of the saddest parts of this story as well. So the family is terrified. They're under such a strict gag order that the family is so afraid to open their mouth even to ask for support from the people who are reaching out to them to help because they think that if they even say one word saying how they feel that that is going to be used against them as a reason to prove that they're negligent and that they won't get their daughter back.

GLENN: This is criminal.

BALCELLS: That's the first thing. The gag order is flabbergasting to me.

GLENN: This is absolutely criminal. I mean, if there was anybody in public office in the Northeast that I trusted, I would get them on the phone. But this is -- this is crazy. How can a parent have a gag order and be told not to say anything? That's their -- it's their child, for the love of Pete. How can --

BALCELLS: It's their child. Since when did you lose your right to even be able to reach out to the people who are there saying "How can I help you" and you're supposed to say "I'm not allowed to talk about it. My child is not with me. It's almost Christmas and I'm not allowed to talk about it." I mean, the devastation on this family is just -- can you imagine having your child taken away from you?

GLENN: I have to tell you --

BALCELLS: I almost think it's worse than the child dying because this is like a Purgatory that goes on forever.

GLENN: I have to tell you if I were the family, when this whole thing is over, I hope to God that they get the biggest damn attorney they can possibly find and sue this children's hospital until their eyes bleed. This is the -- this -- because this is not the only case of this. Tell me about the doctor who is vested in -- or maybe -- you may not know this. The doctor up at this hospital that is vested in this particular disease that they're trying to say the parents have inflicted on this young girl. Do you know this part of the story?

BALCELLS: The doctor at Tufts.

GLENN: No, the doctor at -- the doctor at Boston Children's who is vested in -- yeah, who's vested in the -- what is the name of the disease that children's hospital is saying that she has?

BALCELLS: Somatoform disorder, psychiatric disease.

GLENN: Yeah, it's a psychiatric disease. And this doctor who is at Boston Children's, this is -- you know, she wrote her paper on this, this is her disease. And she is -- every single time this has happened in the past, she's been involved and she's -- I think she's trying to make a name for herself.

BALCELLS: Well, you know, it's kind of one of those positions, if your job is to be the naysayer of those things, you have to prove your position's worthwhile, right? You have to create work for yourself. I mean, we see that all the time. I really don't feel like any one doctor, though, can truly be held responsible for this. I think that this is just a horrific example of a broken --

GLENN: System.

BALCELLS: No one paying attention to common sense here, including the judge.

GLENN: So --

BALCELLS: I don't understand.

GLENN: Okay. So Cristy, what can people do?

BALCELLS: So here's what we're trying to do as an organization. We're mounting an advocacy campaign asking for donations to try to help this family mount an even larger legal response. And you can look at that at mitoaction.org/advocacy. And, you know, I think that the social media aspect is helping. I think that the national awareness and pressure from the media is helping. The family does feel that they are in a corner and they don't know what else to do. So we hope that by showing our support nationally, we can make a difference. We are talking now and have reached out to the legislature to try to emphasize how unjust this is and to ask for some transparency. I find it really appalling that in all of this time, no one has asked Boston Children's Hospital to be transparent with their decision to really, to make a statement and that it is always like the parent being crucified while the hospitals, you know, stands at the top of the mountain. I find that, you know, unspeakable, especially when in this case we're talking about taxpayers contributing their money to pay for this girl's ten-month hospitalization. Her family is not after money. They don't want a dime. They want their little girl to come back home. This child has no parents right now. She hasn't even been put into custody of, like, a family member or an aunt and uncle or someone who could at least be acting like a mom or a dad for her. She has no parent. She lives in a hospital room. Alone.

GLENN: And she is -- she is in a psych ward, is she not?

BALCELLS: She's in a psych ward at the hospital. With a guard.

GLENN: This is one of the --

BALCELLS: It makes you disgusted, right? It makes you sick.

GLENN: Oh, yeah. This is -- this is the kind of stuff that, you know, you read about in the 19 -- you know, from the 1950s and Sixties where you read about what they used to do to people who were, you know, crazy and they would lock these people up in institutions, and you watch them and you just turn away from it in disgust and you think, oh, thank God we're past that. No, we're not past that. No, we're not past that. That's what's happening right here. We have a young girl who is sick. Her parents are trying to do the best thing for her. The State has decided they disagree with the parents and the State wins. What this is saying to you, America, is you don't have a right of your own child. That child does not belong to you. That child belongs to the State. They're allowing you to take care of that child unless they disagree and then the State takes. And this is not like, "Well, we're just going to say Jesus at her at the top of the hour and hope that she gets better." That's not what this is. This is a child that was diagnosed with one disease at Tufts University. She goes in for something else at Boston Children's. They decide that that's -- "We don't agree." They don't have a right to another opinion? They have to take Boston children's Hospital opinion and so because the parents said to hell with that; we're taking our child. The hospital goes to the court and takes custody of the child and puts her in a psych ward. Meanwhile she could walk into the hospital -- now nine months later the girl can't walk.

BALCELLS: Correct.

GLENN: Because she's not about treated, she's not being treated for what Tufts University said she --

BALCELLS: For what she has.

GLENN: It's such an outrage. Listen, here's what I would like you to do. If you are able to donate any money, I would like you to go to mitoaction.org, mitoaction.org/advocacy and make a donation and help this poor family. This is a regular run-of-the-mill family. This is a family that is already -- they are trying to do the right thing for their kid. This is not a crazy family, none of that stuff. I want you to go to mitoaction.org/advocacy so these people can hire a really good attorney, so they can have somebody on their side that is really giving them a defense. Let's see if we can get this child home for Christmas. This is the biggest outrage. Go there and see if you can help out. Cristy, thank you so much and we'll talk to you again.

Do aliens... EXIST? Or is it a distraction?

Rastan | Getty Images

Yesterday, whistleblower David Charles Grusch, a decorated Air Force veteran claimed the Department of Defense has a secret team aimed at "retrieving non-human origin technical vehicles, call it spacecraft if you will, non-human exotic origin vehicles that have either landed or crashed."

Talk about UFOs and aliens has typically been siloed to the realm of sci-fi and "conspiracy theories." However, in recent years, publicized evidence of UFOs and whistleblowers, like David Grusch, have brought the once fantastical subjects into the mainstream. Could it be that alien life forms do, in fact, exist? Have they already arrived and been kept secret underneath the government's nose? Or could this all be a ruse to distract us from more pressing stories in the news cycle?

We want to hear from YOU! Do YOU think aliens and UFOs are a distraction tactic, or do you think there's truth behind these whistleblowers?

Do you believe the government has intel about UFOs?

Do you believe the government has intel about alien life?

Do you believe the government is hiding this intel from the general public?

Do you believe alien life exists? 

Do you think the media is using this story to distract us from other issues?

Remembering D-Day: We are called to the same standard

Universal History Archive / Contributor | Getty Images

79 years ago today, my grandfather jumped out of a plane. He was 17 years old when he joined the 101st Airborne Division, and at the ripe age of 18, he boarded a C-47 aircraft with the rest of his company destined for Normandy. On June 6, 1944, he jumped out of that plane onto Utah Beach, becoming a part of what would become the largest amphibious invasion in military history, Operation Overlord, or, as it's more commonly known, D-Day.

Though only 18, my grandfather was one of the oldest soldiers in his company. He recounted how many, like himself, lied about their age in order to have their shot at fighting for their country. As Omaha Beach veteran Frank Devita recounted:

We were all kids. We were too young to drink. We were too young to vote. And we were too young to die.

And many of them did.

On June 6, 1944, almost 160,000 troops from the United States, the British Commonwealth, and their allies began what would become the ultimate demise of the Third Reich, concluding one of the darkest chapters in human history. 2,500 of these soldiers were American boys who gave the ultimate sacrifice in Normandy, where most of them remain, their bodies never making it back home to the country for which they paid the ultimate price.

2,500 of these soldiers were American boys who gave the ultimate sacrifice in Normandy.

Underwood Archives / Contributor | Getty Images

In an age seemingly devoid of courage and virtue, it is natural to picture these soldiers as the greatest of men. And they were. However, we must remember these exemplars of manhood were boys, young boys, who exhibited the courage and virtue that we so seldom see in those twice their age today.

We must remember these exemplars of manhood were boys.

Remembering D-Day is not only sobering regarding the loss of life and innocence; it's sobering to consider how far our country has strayed from the ideals exemplified by the "greatest generation."

79 years ago, Americans knew what they were fighting for. As a Jewish man born in Berlin, witnessing the rise of fascism and socialism at the expense of individual liberty and the sanctity of life, my grandfather was eager to go back to his birthplace as an American soldier to fight for the fundamental principles of life and liberty that he and his family had been denied in Nazi Germany.

They were some of the lucky individuals who were able to escape—and there's a reason why he and his family chose America as their new homeland. The life and liberty they had been denied in Germany were regarded as sacred in the United States.

Yet, do we still regard these things as sacred?

JEAN-FRANCOIS MONIER / Contributor | Getty Images

Most of the United States still hold that the sanctity of life is contingent upon convenience and circumstance. Economic policies continue to morph closer to the socialism adopted by the rest of the world in the 20th century, penalizing the success and merit that was once tantalizing to immigrants like my grandfather. Moreover, 2020 extinguished any doubt that the freedoms we hold dear are expendable at the whims of our ruling class.

This isn't the same America that provided refuge to my grandfather's family nor is it the same country that he and his brothers-in-arms fought for.

On this anniversary of D-Day, it is important that we remember the sacrifice given by the young American boys, who became the greatest of men, on the beaches of Normandy. However, perhaps it is just as important to remember that we are called to the very same standard as they so powerfully exemplified: to love our country and the principles of life and freedom that stand in stark contrast to much of the onlooking world and to have the courage to defend it, even if it requires the level courage that these young men were called to.

5 new AI your children may be using and how to counter them

NurPhoto / Contributor | Getty Images

With the rapid emergence of widely available AI, it's no surprise many parents are concerned about how interacting with AI might affect their children. It feels like we are just barely beginning to understand how the internet and social media affect childhood development. Now, we suddenly have a whole new dimension to unpack, with reports of people developing emotional attachments to AI and students using AI to write entire essays. It's no wonder why some parents are starting to feel overwhelmed.

Here are 5 of the most prevalent AI programs discoverable to children and the options parents have to deal with them.

Snapchat “My AI”

Image of chat with MyAI on Snapchat

Snapchat

What is it?

My AI is an AI chatbot built into Snapchat. It's designed to look just like another human user, though it will always stay on top of the "Chat" page and can be identified by a robot emoji on the right side of the screen. The bot can be given a custom name and avatar, answer questions, chat, and provide recommendations, much like ChatGPT—the software that powers My AI, albeit less powerful.

Like ChatGPT, My AI has many biases—typically left-leaning, and is subject to mistakes and inaccuracies. Unlike ChatGTP however, My AI may claim to be a real person and a friend to the user, which might be misleading to a young person. Perhaps most disturbing, it can access your location—provided you allow Snapchat to know your location.

If you want to protect your children from My AI, you have a few different options.

The first is to disable My AI within Snapchat. Naturally, Snapchat has made disabling the bot a premium feature, only available to Snapchat+ subscribers. Assuming your child does not already have a Snapchat+ subscription, you can purchase a one-month subscription for $3.99, disable My AI from the Snapchat+ management screen, then cancel the subscription. Users are reporting that once the subscription ends the bot remains disabled, though note that your child can easily re-enable the feature at any time and it cannot be password protected.

Your other options are to either block or limit the use of the entire app from within the settings of your children's phones or to educate your child on the dangers and nature of AI.

ChatGPT/OpenAI

What is it?

ChatGPT is one of the most popular AI programs available on the internet. Its sophistication and power make it as formidable as it is fascinating. Glenn had a conversation with ChatGPT, which demonstrated its power and intelligence. It's an AI-powered chatbot and much like other chatbots, it can answer questions, chat, and provide recommendations. It can also write essays, do math worksheets, translate back and forth between many languages, write computer code, and much more. Like My AI, it can be inaccurate at times and has major left-leaning biases. The company responsible for ChatGPT, OpenAI, has other AI tools, such as DALL·E 2, an image creation program that utilizes the same AI as ChatGPT.

If you want to protect your children from ChatGPT, you have a few different options.

The first and most important thing to do is to make sure that your children know that using ChatGPT or any other AI to do homework, write essays or complete tests or quizzes IS CHEATING. There have been multiple stories recently about students using ChatGPT to write papers or do homework and the consequences they faced once they got caught. Long story short, it never ends well for the student. Make sure your children understand that although AIs are not humans, using them to complete school work IS STILL cheating.

If you want to prevent your children from accessing ChatGPT altogether, you can block it along with other websites using your web browser's child settings. Here are instructions on how to block websites for your child on Google Chrome.

Replika

What is it?

Replika is an online companion that custom builds an AI "companion," a chatbot with a customizable name and avatar. Though similar to My AI, Replika creates an avatar whose appearance and function is much more lifelike than My AI, and, consequently, more intimate. Replika advertises itself as "The AI companion who cares" and will remember things that are important to you in order to be the perfect "companion."

The app rewards users for time spent talking with their AI companions with points that can be spent on unlocking more clothes, jewelry, hairstyles, accessories, etc., and gives the user the option to skip the points altogether and purchase the digital items with real money, a common tactic in apps and mobile games.

The major thing that sets Replika apart from other chatbots is its ability to "role play," flirt, and send "hot photos." These features, which play a major role in Replika's advertising, are meant to promote Replika's use as a replacement for a "partner."

If you want to protect your children from Replika, you really only have one option.

You can block the app and website on your children's devices. Replika does not have a child mode or any way to disable explicit content, it is either all or nothing.

AI Dungeon

What is it?

AI Dungeon is a spin-off of the popular role-playing game, "Dungeons and Dragons." It's a text-based game where the player chooses or creates a scenario and plays out the scenario with the AI. For example, the player might be cast in the role of a knight and can type out what the knight says and does, and the AI will give text responses to the players' actions in an attempt to create an interactive story.

The game can be played for free, but players can also purchase access to more powerful AI, which in theory creates better stories. Moreover, you can purchase additional game modes. The major concern is that the AI can generate explicit material as well as violent scenarios, which it can describe quite graphically.

If you want to protect your children from AI Dungeon you really only have one option:

You can turn on "safe mode" from within the app settings, but it can easily be deactivated. Your best bet is to block the app on your children's devices.

YouTube

What is it?

It might surprise you to learn that the algorithm that decides what content gets recommended to you on YouTube is AI-powered. It sorts through millions of videos and decides which ones to recommend to you based on many factors, such as the channels you are subscribed to, your watch history, trending videos, etc. The goal of this AI algorithm is to keep you hooked and watching, which generates ad revenue for YouTube.

YouTube is owned by Google, and both companies have a long track record of left-wing biases, which permeates YouTube's algorithm. This can lead to videos about gun safety being labeled as "promoting violence" and videos of drag queens being promoted to children.

If you want to protect your children from the YouTube algorithm, you have a few different options.

You can set up a YouTube Kids account for your children, which gives you a lot of control over what your child can and can not find and watch on YouTube. Be warned, due to YouTube's left lean, videos such as "Drag Queen Storytime" are still available, though the channels that post them can be blocked.

It might take a while to set up properly, and things may get through the cracks, but you could set up a relatively safe YouTube account for your children. The other option, of course, is to block YouTube on your kids' devices, and web browsers, keeping them from accessing it at all.

TAKE THE POLL: Are your CHILDREN using AI?

It feels like lately hardly a week can go by without some new AI advancement—or warning—making headlines, but unless you have been paying VERY close attention you might believe the power of AI is something relegated to technical institutions or Silicon Valley labs and only accessible by the most highly trained computer wizards. But as Glenn has demonstrated, AI can now be accessed by anyone with internet access and can take many different shapes and forms—not just that of the ominous and awkward ChatBot. In fact, you are probably using AI without even realizing it.

If AI can enter into your life without you realizing it, would you even know if your CHILDREN were interacting with it?

We want to hear from YOU. Do you allow your children to use AI? Do you know if they are? Do you use AI? Are you aware of the many shapes and forms AI can take?

Do you use AI?

Do you allow your children to use AI?

Do you know if your children are using AI?

Did you know that AI is integral to the functions of many social media content recommendation algorithms, including YouTube, TikTok, and Instagram?  

Did you know that many messaging platforms your child may be using, like Discord and Snapchat, now have built-in AI chatbots?

Are you aware that AI such as ChatGPT can be easily accessed from any internet browser?

Are you aware that AI such as ChatGPT can be easily used to CHEAT school assignments?

Are you aware that AI applications exist that are meant to replace intimate human relationships and are available on most smartphones?

Are you teaching your children about AI and its potential dangers and misuses?